The New Zealand (NZ) government has prescribed a goal for health care at all levels to be patient-centred. Patient-centred care is recognised as an ‘approach to the planning, delivery, and evaluation of health care that is grounded in mutually beneficial partnerships among healthcare providers, patients, and families’ (Institute for Patient- and Family-Centred Care). It is a commitment to returning the power to the patient, not the health care system. Presently it is unknown the extent to which the existing health care systems in NZ supports or suppresses the ability to provide care which is patient-centred.
This research study will describe, explore and analyze my own personal and professional experiences and perceptions as a mother, clinical nurse specialist, and advocate for children with developmental disabilities.